tag:blogger.com,1999:blog-19578141146355125172024-03-13T15:28:56.015-07:00Congential Ptosis and Frontalis Sling SurgeryThis is about my family's experience with my son's congenital ptosis. Hopefully it will be useful to someone who, like me, was searching for answers online and couldn't find anything. It will probably be most helpful if read in chronological order, so go to the last post first and read backward. If you want to, feel free to email me at tiffanynvaughn@gmail.comTiffanyhttp://www.blogger.com/profile/16824547978990917292noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-1957814114635512517.post-66042675497994790292015-05-03T15:36:00.001-07:002015-05-03T15:36:45.455-07:00Update 2015 with Video<div class="separator" style="clear: both; text-align: center;">
<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dw_uyVdbjNGSZ-J4QV41lTvR7dFwmXKTjP5Rnrf5zrIJGqxt98JxMPKigsVJK4zfTl-21adBp36F_I_MBLXNA' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div>
I feel like in pictures, Danny's eyes look even. When he's looking around it when the ptosis is noticeable. Ignore the randomness of the video and just watch is eyes (if you are curious, he is trying Rattlesnake at Rustlers Rooste in Phoenix, AZ and says it tastes like chicken nuggets).<br />
<br />
At our latest eye appointment his vision was not as clear in the ptosis eye. The doctor suspected it was from his eye getting dried out while sleeping so he had us use Refresh PM ointment in his eye at bedtime. It was a little easier to use with a six-year-old, but he still didn't like it. I mostly would just go into his room when he was already asleep, before I went to bed, and put some in his eye. The doctor rechecked his eyes two months later and his vision was again perfect. I have not been diligent about giving him the ointment every night since because I know that if his eye starts to get dry we can just moisten it again without a problem (He just told me his eye was starting to feel dry so I better start using it again).<br />
<br />
Here are some pictures too:<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="http://1.bp.blogspot.com/-9DGv9N2votQ/VUah_XdMzII/AAAAAAAAB7c/XOkVs7QF52U/s1600/pics%2B091.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://1.bp.blogspot.com/-9DGv9N2votQ/VUah_XdMzII/AAAAAAAAB7c/XOkVs7QF52U/s1600/pics%2B091.JPG" height="320" width="240" /></a></div>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="http://2.bp.blogspot.com/-HF_ceR-9elU/VUaiePsrIOI/AAAAAAAAB7k/2qjqEY2gWEk/s1600/pics%2B257.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="http://2.bp.blogspot.com/-HF_ceR-9elU/VUaiePsrIOI/AAAAAAAAB7k/2qjqEY2gWEk/s1600/pics%2B257.JPG" height="200" width="150" /></a><a href="http://3.bp.blogspot.com/-lH8K1FSYgK8/VUaifu_djSI/AAAAAAAAB7s/QMPwGIRW1hQ/s1600/pics%2B258.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://3.bp.blogspot.com/-lH8K1FSYgK8/VUaifu_djSI/AAAAAAAAB7s/QMPwGIRW1hQ/s1600/pics%2B258.JPG" height="200" width="150" /></a></div>
<br />
<br />
<br />
Tiffanyhttp://www.blogger.com/profile/16824547978990917292noreply@blogger.com7tag:blogger.com,1999:blog-1957814114635512517.post-60080205492601697492014-05-10T21:03:00.001-07:002014-05-10T21:10:27.790-07:00His eyes while sleeping<div class="separator" style="clear: both;">I haven't updated in a while. Danny is now almost 6. We were original told he'd have his next surgery before kindergarten but the last time we went to the ophthalmologist he said it wasn't affecting his vision yet so we decided to wait.</div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;">I didn't realize it had been so long since I've updated! We moved to Arizona a couple years ago and part of the reason we put off the surgery is because I don't know about a surgeon here and I really liked the results with our surgeon in Utah and I trust him. I'm considering traveling back there for the surgery but haven't decided yet.</div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;">I get a lot of questions about his eye when he sleeps so here is a picture. He's never had any dry eye or vision issues.<a href="https://lh4.googleusercontent.com/-0zcJheh3Wis/U272kz1eYJI/AAAAAAAAAso/UnYui4aJyb0/s640/blogger-image-1302813631.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://lh4.googleusercontent.com/-0zcJheh3Wis/U272kz1eYJI/AAAAAAAAAso/UnYui4aJyb0/s640/blogger-image-1302813631.jpg"></a></div>Tiffanyhttp://www.blogger.com/profile/16824547978990917292noreply@blogger.com6tag:blogger.com,1999:blog-1957814114635512517.post-22073167159751326672011-10-18T08:50:00.000-07:002011-10-18T09:02:15.466-07:00One Year Post-Op (2nd Time Around)<a href="http://2.bp.blogspot.com/-5-YOeyXMEUw/Tp2hZ7vbfYI/AAAAAAAAASM/-r2LYN2XJ1U/s1600/sept%2B9.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 177px; DISPLAY: block; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5664861373207379330" border="0" alt="" src="http://2.bp.blogspot.com/-5-YOeyXMEUw/Tp2hZ7vbfYI/AAAAAAAAASM/-r2LYN2XJ1U/s200/sept%2B9.JPG" /></a> Thought it was about time to post more pictures. Danny is now 3 years old. It has been a year since his second surgery and things are looking great. He still has no vision problems. We had a check-up with the surgeon last month. He said things are working good and that we should come back in another year.<br /><div><br />Most of the time, his eyelid looks fine. When he is looking straight ahead, the only noticeable difference is the crease in his eyelid (which is missing on his ptosis eye). When he looks up, the non-ptosis eye is open wider. When he looks down the ptosis eye is open wider. </div><br /><br /><div>Danny's favorite silly face to make is one where he closes his ptosis eye and screws up his face, so in most of my pictures is eyelid looks extreme, but it's not. I asked him if his eye ever bothers him and his looked at me really confused and shook his head no. Sometimes I get people asking me about it. Most of the time they assume he just bonked it or something. If kids ask me about it, I tell them that he was born with it almost all the way closed and had to have surgery to get it open, so now it looks a little different. At home we don't make it a big deal. We joke about his silly eyelid sometimes. Today we were looking at newborn pictures and Danny said, "It's Pirate Dan!" Hopefully he will be able to continue that carefree attitude about himself.</div><br /><br /><div>So for these pictures I took 2 from the same day and tried to put them side by side so you can see how different his eye can look on the same day.<a href="http://1.bp.blogspot.com/-1WGQsEiPwnI/Tp2gcR_48nI/AAAAAAAAARc/_9JQmG7_2a0/s1600/sept%2B10%2B%25282%2529.JPG"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 189px; FLOAT: left; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5664860314030109298" border="0" alt="" src="http://1.bp.blogspot.com/-1WGQsEiPwnI/Tp2gcR_48nI/AAAAAAAAARc/_9JQmG7_2a0/s200/sept%2B10%2B%25282%2529.JPG" /></a></div><br /><br /><div><a href="http://1.bp.blogspot.com/-0nq-bPeAG9Q/Tp2gmoFL-KI/AAAAAAAAASA/uKpSxJirKV0/s1600/Sept%2B10.JPG"><img style="MARGIN: 0px 0px 10px 10px; WIDTH: 184px; FLOAT: right; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5664860491756599458" border="0" alt="" src="http://1.bp.blogspot.com/-0nq-bPeAG9Q/Tp2gmoFL-KI/AAAAAAAAASA/uKpSxJirKV0/s200/Sept%2B10.JPG" /></a></div><br /><br /><div><a href="http://1.bp.blogspot.com/-0nq-bPeAG9Q/Tp2gmoFL-KI/AAAAAAAAASA/uKpSxJirKV0/s1600/Sept%2B10.JPG"></a></div><br /><br /><div><a href="http://1.bp.blogspot.com/-0nq-bPeAG9Q/Tp2gmoFL-KI/AAAAAAAAASA/uKpSxJirKV0/s1600/Sept%2B10.JPG"></a></div><br /><br /><div><br /><a href="http://3.bp.blogspot.com/-oy-MUujyPW4/Tp2gcOCnZgI/AAAAAAAAARE/yD1CLC5vg5I/s1600/Danny_7393%2Bcopy.jpg"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 162px; FLOAT: left; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5664860312967800322" border="0" alt="" src="http://3.bp.blogspot.com/-oy-MUujyPW4/Tp2gcOCnZgI/AAAAAAAAARE/yD1CLC5vg5I/s200/Danny_7393%2Bcopy.jpg" /></a><a href="http://1.bp.blogspot.com/-coUU16MAllM/Tp2gl4wOgDI/AAAAAAAAARo/51VehrSvJh4/s1600/Danny_7400%2Bcopy.jpg"><img style="MARGIN: 0px 0px 10px 10px; WIDTH: 180px; FLOAT: right; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5664860479052218418" border="0" alt="" src="http://1.bp.blogspot.com/-coUU16MAllM/Tp2gl4wOgDI/AAAAAAAAARo/51VehrSvJh4/s200/Danny_7400%2Bcopy.jpg" /></a><br /><br /><div><br /><br /><div><a href="http://4.bp.blogspot.com/-rGvRoFluBQQ/Tp2gcNawkmI/AAAAAAAAARM/VF0tA5DFL_A/s1600/oct%2B3%2B2.JPG"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 165px; FLOAT: left; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5664860312800629346" border="0" alt="" src="http://4.bp.blogspot.com/-rGvRoFluBQQ/Tp2gcNawkmI/AAAAAAAAARM/VF0tA5DFL_A/s200/oct%2B3%2B2.JPG" /></a><a href="http://3.bp.blogspot.com/-Loz5c_nXYtA/Tp2gl-2cMVI/AAAAAAAAAR4/KC95v36js2Y/s1600/oct%2B3.JPG"><img style="MARGIN: 0px 0px 10px 10px; WIDTH: 182px; FLOAT: right; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5664860480688894290" border="0" alt="" src="http://3.bp.blogspot.com/-Loz5c_nXYtA/Tp2gl-2cMVI/AAAAAAAAAR4/KC95v36js2Y/s200/oct%2B3.JPG" /></a><br /><br /></div></div></div>Tiffanyhttp://www.blogger.com/profile/16824547978990917292noreply@blogger.com10tag:blogger.com,1999:blog-1957814114635512517.post-65741124751980154442011-07-25T19:21:00.000-07:002011-07-25T19:33:54.172-07:00Sleeping EyesI get a lot of questions about how much Danny's eye is open when he is asleep and how often I put in ointment. First off, I only put the "Refresh PM" in his eyes for a week or 2 after surgery. He is now one year out from his second surgery. Second, he amount his eye is open varies but usually is is probably more than halfway closed. In the car (or if he is asleep sitting up for some other reason) his eye is open pretty wide. In the car the other day he fell asleep so I decided to snap a quick picture to show you all:<br /><br /><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 240px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5633482820668593202" border="0" alt="" src="http://3.bp.blogspot.com/-KOKKMp8vqN0/Ti4mxyY3lDI/AAAAAAAAAKA/1YC8pk9aYsY/s320/pics%2B007.JPG" /><br />Don't freak out if you haven't had the surgery done yet. This is really extreme and it usually isn't open this wide, but sometimes it is. And I don't use ointment and he has never had any dry eye problems. It's not something that ever bothers him. Here is the awake picture just after so you can see how normal (although spacey) his eyes can look when awake even if they look like this when asleep: <br /><div><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 240px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5633482433776557010" border="0" alt="" src="http://1.bp.blogspot.com/-3md3lG16dOU/Ti4mbRGnm9I/AAAAAAAAAJ4/sBKd2Uj1Umo/s320/pics%2B008.JPG" /><br /><br /><br /><br /><br /><br /><p></p></div>Tiffanyhttp://www.blogger.com/profile/16824547978990917292noreply@blogger.com0tag:blogger.com,1999:blog-1957814114635512517.post-42138522229668588722010-12-03T12:03:00.000-08:002010-12-15T20:26:55.974-08:00Post-Op Appointment<a href="http://2.bp.blogspot.com/_Insyby0c8Lw/TQmTMDd6pzI/AAAAAAAAAJQ/exT9_e-kZMY/s1600/dan.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 304px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5551129851009345330" border="0" alt="" src="http://2.bp.blogspot.com/_Insyby0c8Lw/TQmTMDd6pzI/AAAAAAAAAJQ/exT9_e-kZMY/s320/dan.jpg" /></a><br /><div>There is really not much to report here. The surgeon looked at him for a few seconds and said he looks good. He said one of the ways you can tell the surgery worked in that when they look down the sling will pull that eye open more. He also said at this point it is not necessary to continue with the ointment (which I haven't been doing anyway). But the surgeon says that even though his eyelid is slightly open when he sleeps, it is shut enough to protect the eye and keep it moist.<br /><br />Danny doesn't complain about his eye at all. He can shut it just fine. He does have some scars because he wouldn't stop picking at his scabs, but they are very small. They eyelids look pretty even most of the time. But he does have some faces where you can really see a difference. This is a picture of him doing a downward gaze, which is when the difference is most <span id="SPELLING_ERROR_0" class="blsp-spelling-corrected">noticeable</span>.</div><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 308px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5551131160312243586" border="0" alt="" src="http://4.bp.blogspot.com/_Insyby0c8Lw/TQmUYRADZYI/AAAAAAAAAJY/hd5eNYQTD1Y/s320/dan2.jpg" /><br /><br /><div></div>Tiffanyhttp://www.blogger.com/profile/16824547978990917292noreply@blogger.com13tag:blogger.com,1999:blog-1957814114635512517.post-81906177564553685572010-10-23T15:17:00.001-07:002010-10-23T15:34:25.044-07:00Recovery Progession PicturesHere is a day-by-day progression of Danny's recovery. He is making silly faces in a lot of the pictures because it is hard to take pictures of a busy two-year-old boy.<br /><br /><div align="center">Sept 29th-Before Surgery</div><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5531371305130071122" border="0" alt="" src="http://4.bp.blogspot.com/_Insyby0c8Lw/TMNg5UMRFFI/AAAAAAAAAJA/IE5jSYYlpDE/s320/9-29+before.JPG" /><br /><div align="center">Sept 29th-After Surgery </div><div align="center"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5531371309061642562" border="0" alt="" src="http://4.bp.blogspot.com/_Insyby0c8Lw/TMNg5i1oGUI/AAAAAAAAAJI/oMWJrlreejs/s320/9-29+after.JPG" /><br />Sept 30th<br /><a href="http://1.bp.blogspot.com/_Insyby0c8Lw/TMNgQReWu_I/AAAAAAAAAI4/exX4O2tUK3A/s1600/9-30.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5531370600025996274" border="0" alt="" src="http://1.bp.blogspot.com/_Insyby0c8Lw/TMNgQReWu_I/AAAAAAAAAI4/exX4O2tUK3A/s320/9-30.JPG" /></a><br /><br />Oct 1st<br /><div><a href="http://3.bp.blogspot.com/_Insyby0c8Lw/TMNgP9U2qoI/AAAAAAAAAIw/Y2SiJokO8e0/s1600/10-1.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 240px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5531370594617436802" border="0" alt="" src="http://3.bp.blogspot.com/_Insyby0c8Lw/TMNgP9U2qoI/AAAAAAAAAIw/Y2SiJokO8e0/s320/10-1.JPG" /></a><br />This one is Oct 2nd while his was asleep. I'd tried to do other sleeping ones but he usually gets mad and squeezes his eye shut. It acually is a little more closed than this now.<br /><br /><div><a href="http://4.bp.blogspot.com/_Insyby0c8Lw/TMNgPoW04TI/AAAAAAAAAIo/9wudGlYC0Cw/s1600/10-2+sleeping.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5531370588988563762" border="0" alt="" src="http://4.bp.blogspot.com/_Insyby0c8Lw/TMNgPoW04TI/AAAAAAAAAIo/9wudGlYC0Cw/s320/10-2+sleeping.JPG" /></a><br /><br />Oct 2nd<br /><div><a href="http://1.bp.blogspot.com/_Insyby0c8Lw/TMNgPQhqyAI/AAAAAAAAAIg/FHIfQELmJ9E/s1600/10-2.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5531370582591588354" border="0" alt="" src="http://1.bp.blogspot.com/_Insyby0c8Lw/TMNgPQhqyAI/AAAAAAAAAIg/FHIfQELmJ9E/s320/10-2.JPG" /></a><br /><br />Oct 3rd<br /><div><a href="http://4.bp.blogspot.com/_Insyby0c8Lw/TMNgPE92VlI/AAAAAAAAAIY/YjbFHhLQg74/s1600/10-3.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5531370579488560722" border="0" alt="" src="http://4.bp.blogspot.com/_Insyby0c8Lw/TMNgPE92VlI/AAAAAAAAAIY/YjbFHhLQg74/s320/10-3.JPG" /></a><br />Oct 4th<br /><div><a href="http://1.bp.blogspot.com/_Insyby0c8Lw/TMNf1nHRrvI/AAAAAAAAAIQ/v_raVGfb2Wo/s1600/10-4.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5531370141978308338" border="0" alt="" src="http://1.bp.blogspot.com/_Insyby0c8Lw/TMNf1nHRrvI/AAAAAAAAAIQ/v_raVGfb2Wo/s320/10-4.JPG" /></a><br /><br />Oct 5th<br /><div><a href="http://1.bp.blogspot.com/_Insyby0c8Lw/TMNf1VP-OxI/AAAAAAAAAII/xGElIp_Y2_0/s1600/10-5.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 240px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5531370137182944018" border="0" alt="" src="http://1.bp.blogspot.com/_Insyby0c8Lw/TMNf1VP-OxI/AAAAAAAAAII/xGElIp_Y2_0/s320/10-5.JPG" /></a><br />Oct 6th<br /><div><a href="http://3.bp.blogspot.com/_Insyby0c8Lw/TMNf1HoVOSI/AAAAAAAAAIA/dyamJvdQk_Q/s1600/10-6+(2).JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5531370133527017762" border="0" alt="" src="http://3.bp.blogspot.com/_Insyby0c8Lw/TMNf1HoVOSI/AAAAAAAAAIA/dyamJvdQk_Q/s320/10-6+(2).JPG" /></a><br />also Oct 6th. You can see how the face he is making or the position he is in makes a difference to how his eye looks.<br /><div><a href="http://3.bp.blogspot.com/_Insyby0c8Lw/TMNf0vL_GkI/AAAAAAAAAH4/C6-MZOVVfSk/s1600/10-6.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5531370126965676610" border="0" alt="" src="http://3.bp.blogspot.com/_Insyby0c8Lw/TMNf0vL_GkI/AAAAAAAAAH4/C6-MZOVVfSk/s320/10-6.JPG" /></a><br />Oct 10th<br /><div><a href="http://3.bp.blogspot.com/_Insyby0c8Lw/TMNf0SJEvFI/AAAAAAAAAHw/PNQVAIWmhuU/s1600/10-10.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 240px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5531370119168834642" border="0" alt="" src="http://3.bp.blogspot.com/_Insyby0c8Lw/TMNf0SJEvFI/AAAAAAAAAHw/PNQVAIWmhuU/s320/10-10.JPG" /></a><br /><div>Most of the time his eyes look pretty even. When he is looking certain directions or making certain faces it is more obvious that they are not exactly the same. We have the post-op appointment with the surgeon just before Thanksgiving. I'll update again after that.</div></div></div></div></div></div></div></div></div></div><br /></div>Tiffanyhttp://www.blogger.com/profile/16824547978990917292noreply@blogger.com1tag:blogger.com,1999:blog-1957814114635512517.post-55026194598493098832010-09-30T19:05:00.000-07:002010-10-01T08:45:52.583-07:00Recovery...First DaysSo first let me answer the questions that I get asked most often.<br /><br />Danny CAN and does close his eye. I was watching him while I was reading to him tonight and when he blinks, his right eye, the <span id="SPELLING_ERROR_0" class="blsp-spelling-error">ptosis</span> eye, only <span id="SPELLING_ERROR_1" class="blsp-spelling-corrected">flinches</span>. It doesn't blink along with the other one. But when he went to close his eyes to sleep, he shut it just fine. It looks like he raises the bottom lid up to close the gap.<br /><br />As far as symmetry goes, it is too early to tell how even they are because of swelling. I'll keep you updated.<br /><br />Danny slept from about 11am on the car ride home from the hospital until 3pm when I went to give him Tylenol with <span id="SPELLING_ERROR_2" class="blsp-spelling-corrected">Codeine</span>. He slept well except for a couple times where he would whine for a few seconds. He didn't really want to wake up at first, but when he did he was happy. The swelling had increased a lot. This picture is from just after he woke up:<img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5522907033893880322" border="0" alt="" src="http://3.bp.blogspot.com/_Insyby0c8Lw/TKVOr4rAQgI/AAAAAAAAAHg/YREUh-epoDE/s320/Danny%27s+Recovery+007.JPG" />At 3:30pm I gave him <span id="SPELLING_ERROR_3" class="blsp-spelling-error">Amoxicillin</span> and ointment on his stitches. He ate a slice of bread and relaxed and watched TV for an hour. Then he decided it was time to play. He gave me his pacifier and <span id="SPELLING_ERROR_4" class="blsp-spelling-error">sippy</span> cup, then started acting like a normal two year old. Around 6pm he had mac & cheese for dinner, had some Motrin after complaining about his eye a little, then relaxed in front of the TV. He was really tired. Just before 7pm I put him to bed. He felt a little warm and may have had a slight fever. A little after 7pm, he came wandering out of his room. I was able to give him the <span id="SPELLING_ERROR_5" class="blsp-spelling-error">Amoxicillin</span> and ointment that I had <span id="SPELLING_ERROR_6" class="blsp-spelling-corrected">forgotten</span> earlier. But then he decided he wanted to sit with me at watch Mickey Mouse Club house for a couple hours. At 9pm I have him Tylenol with Codeine and put him to bed. When he went to bed the surgical tape was off of one of his incision. This picture was him just before he want to bed (wearing Dad's socks):<br /><br /><a href="http://4.bp.blogspot.com/_Insyby0c8Lw/TKVOsMKQRNI/AAAAAAAAAHo/AZ_BCmL-1yE/s1600/Danny%27s+Recovery+015.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 240px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5522907039125226706" border="0" alt="" src="http://4.bp.blogspot.com/_Insyby0c8Lw/TKVOsMKQRNI/AAAAAAAAAHo/AZ_BCmL-1yE/s320/Danny%27s+Recovery+015.JPG" /></a><br />Danny woke up around 7am. He woke up happy had feeling fine. I gave him <span id="SPELLING_ERROR_7" class="blsp-spelling-error">Amoxicillin</span> but no pain killers. He looked a little less swollen and all the surgical tape was gone from his incisions. This picture was taken just after he woke up so his eyes look a little sleepy still:<br /><br /><div><div><a href="http://1.bp.blogspot.com/_Insyby0c8Lw/TKVKy2a6GKI/AAAAAAAAAGw/agmIAgVFsDg/s1600/Danny%27s+Recovery+027.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 300px; DISPLAY: block; HEIGHT: 400px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5522902755502069922" border="0" alt="" src="http://1.bp.blogspot.com/_Insyby0c8Lw/TKVKy2a6GKI/AAAAAAAAAGw/agmIAgVFsDg/s400/Danny%27s+Recovery+027.JPG" /></a><br />This picture was around 9am:<br /><br /><div><a href="http://1.bp.blogspot.com/_Insyby0c8Lw/TKVKzQi4DZI/AAAAAAAAAG4/LyxG5kw3r3c/s1600/Danny%27s+Recovery+034.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 300px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5522902762514812306" border="0" alt="" src="http://1.bp.blogspot.com/_Insyby0c8Lw/TKVKzQi4DZI/AAAAAAAAAG4/LyxG5kw3r3c/s400/Danny%27s+Recovery+034.JPG" /></a> At 10am we went to Chick-<span id="SPELLING_ERROR_8" class="blsp-spelling-error">Fil</span>-A with a friend. Danny acted just like himself, playing on the climbing toys and sliding down the slides. Right before we left, around 11:30a, he complained about his eye hurting so I gave him Motrin. But I think what may have happen is that he wiped a sanitizing wipe over the incisions and the alcohol stung the wounds.<br /><br /><div><a href="http://4.bp.blogspot.com/_Insyby0c8Lw/TKVKzvTqSYI/AAAAAAAAAHA/v-uwYyipNHE/s1600/Danny%27s+Recovery+047.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 300px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5522902770772494722" border="0" alt="" src="http://4.bp.blogspot.com/_Insyby0c8Lw/TKVKzvTqSYI/AAAAAAAAAHA/v-uwYyipNHE/s400/Danny%27s+Recovery+047.JPG" /></a> When we got home he had more <span id="SPELLING_ERROR_9" class="blsp-spelling-error">Amoxicillin</span> and tomato soup for lunch. So after lunch, since he was covered in soup, a little dirty from playing, and still a little gross still from the surgery, I decided it was time for a bath. I was a little nervous, but it was no big deals. We washed like normal and, since he refuses to tilt his head back when I rinse his hair, he had water running down his face. He was able to squeeze his eye shut just fine and I lightly blotted the surgical area dry. These pictures were just after his bath:<br /><br /><div><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 300px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5522902782370806802" border="0" alt="" src="http://3.bp.blogspot.com/_Insyby0c8Lw/TKVK0ag6fBI/AAAAAAAAAHQ/hTi0YJCaDsk/s400/Danny%27s+Recovery+061.JPG" /><a href="http://2.bp.blogspot.com/_Insyby0c8Lw/TKVK0IK2IZI/AAAAAAAAAHI/XugFJ-tOaKI/s1600/Danny%27s+Recovery+054.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 300px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5522902777446408594" border="0" alt="" src="http://2.bp.blogspot.com/_Insyby0c8Lw/TKVK0IK2IZI/AAAAAAAAAHI/XugFJ-tOaKI/s400/Danny%27s+Recovery+054.JPG" /></a> We went for a walk <span id="SPELLING_ERROR_10" class="blsp-spelling-error">around</span> 6pm, and he was still doing great. The swelling had gone down a lot, but it is obviously still swollen on his eyelid. I think that is taking longer because they took out the fatty tissue and made a longer incision there.<br /><br /><div><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5522902901736413826" border="0" alt="" src="http://2.bp.blogspot.com/_Insyby0c8Lw/TKVK7XL5GoI/AAAAAAAAAHY/jcUgSVTW7y8/s320/Danny%27s+Recovery+068.JPG" /> He went to bed following his normal routine, except with <span id="SPELLING_ERROR_11" class="blsp-spelling-error">Amoxicillin</span> and ointment. This surgery has not affected his personality at all and I don't think his eye is even really bothering him.<br /><br /><div></div></div></div></div></div></div></div>Tiffanyhttp://www.blogger.com/profile/16824547978990917292noreply@blogger.com2tag:blogger.com,1999:blog-1957814114635512517.post-83544681402428206682010-09-29T10:31:00.000-07:002010-09-30T07:54:39.250-07:002nd Surgery-Frontalis Sling replacementAt 2 years & 2 months old, just about 2 years after his first, Danny had another <span id="SPELLING_ERROR_0" class="blsp-spelling-error">Frontalis</span> Sling surgery. As mentioned in previous posts, his eyelid had progressively become droopier over these two years so they decided it was time to either shorten or replace the sling. I'll try to be as detailed as possible and take you through our day.<br /><div><div><div><div><div><div><div><div><div><div><div><br /><div>The day surgery, from 12am-4:30am Danny was supposed to drink only clear liquids...apple juice, water, Sprite. Then after 4:30am he was not supposed to eat or drink anything. We woke him up to leave for the hospital at 5am. He was happy, although he did want a <span id="SPELLING_ERROR_1" class="blsp-spelling-error">sippy</span> with milk. Besides that he did not ask for any food and was pretty good with the whole situation. </div><br /><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5522411925972805058" border="0" alt="" src="http://2.bp.blogspot.com/_Insyby0c8Lw/TKOMYz79ZcI/AAAAAAAAAEw/PRfACdfvve0/s320/Danny%27s+Surgery+001.JPG" /> <div>Surgery time was 7am, so we had to check-in at "Same-Day Surgery" at 6am. Danny had fun playing with all the toys. When the nurse called us back to get his measurements and check his vitals, Danny got a little nervous. He sat on my lap clutching his backpack while the nurse took his temperature, took his blood pressure, etc. We changed Danny into hospital clothes and the nurse took us to the O.R. waiting room. </div><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 240px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5522411562035829602" border="0" alt="" src="http://3.bp.blogspot.com/_Insyby0c8Lw/TKOMDoKn22I/AAAAAAAAAEo/ZEedtK1JgiI/s320/Danny%27s+Surgery+009.JPG" /><br /><div>Danny again started having fun and playing with the toys. The education nurse brought by a very non-<span id="SPELLING_ERROR_2" class="blsp-spelling-error">descript</span> doll wearing a hospital gown for him to color and play with. That was really nice because he had something to take with him back to the operating room. <img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5522412272157593794" border="0" alt="" src="http://3.bp.blogspot.com/_Insyby0c8Lw/TKOMs9k2EMI/AAAAAAAAAE4/QPDg3U6P2nw/s320/Danny%27s+Surgery+027.JPG" /></div><br /><div>The surgeon, Dr. Patel, came and talked to us and Danny for a minute and marked Danny's eye. He lifted the lid a little and looked at it. He told us that when kids are older they can adjust it better because the kids can tell them what feels right, but when they are littler they kind of have to guess. He was followed by the attending nurse, who just had us sign some paper work, and the anesthesiologist. The anesthesiologist told us the it was pretty safe, safer than driving in a car. He said they would give him gas (he chose cotton candy scent) and get him to sleep before they gave him an IV or anything. That was nice knowing he wouldn't be freaking out about getting a shot without me there. When he was done talking to us, he walked us back towards the OR, with me carrying Danny. He took Danny and his doll, then they waved goodbye and walked out of the hall at 7:30am. We went to the waiting room.<img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 240px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5522412618970444194" border="0" alt="" src="http://4.bp.blogspot.com/_Insyby0c8Lw/TKONBJjeMaI/AAAAAAAAAFA/0FKJ0puJkb0/s320/Danny%27s+Surgery+028.JPG" /> Dr. Patel came into the waiting room around 8:30am. He said everything went fine. He drew a diagram of what they did, showing two incisions with dissolving stitches just above his eyebrow, another one on his forehead, between the other two, two on his eyelid, then a longer one across his eyelid. He explained that when they went in there was a lot of fatty tissue that was preventing him from opening his eye as well as he would otherwise be able to. He explained that this was because his muscles don't work the same as ours. So they decided to trim some of that fat, which is why he had the extra incision along his eyelid. Dr. Patel explained that this will make the sling last longer. He said that he has some patients who he has done this to 8 years ago that have not needed the sling replaced yet. In the diagram he also showed us how the sling was positioned across the eyelid, up on each side to the two incisions, then together at the top <span id="SPELLING_ERROR_3" class="blsp-spelling-corrected">incision</span>. He explained that when Danny raises his eyebrow muscles it will pull the eyebrow up and the eyebrow would pull open the eyelid. We were instructed to put an antibiotic ointment on the incision 2-3 times a day for a few days just to keep them moist. We are also supposed to put Refresh PM ointment in his eye every time he naps or sleeps until we go to the post-op appointment 8 weeks from now. According to Dr. Patel, his eye will be open about twice as much as it was before when he is sleeping. But he also said that kids adjust to his very easily, and judging from last time, that is true. Dr. Patel also said that Danny would be trying to rub his eye because it would feel weird and numb and that was fine. It wouldn't matter if the tape came off and as long as he didn't bump his head hard enough for the stitches to split open he should be fine. He left us with a warning that it would get worse before it got better.</div><br /><br /><a href="http://4.bp.blogspot.com/_Insyby0c8Lw/TKOXG5_zDnI/AAAAAAAAAGo/lYG6k73YD9U/s1600/Diagram2.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 258px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5522423712989777522" border="0" alt="" src="http://4.bp.blogspot.com/_Insyby0c8Lw/TKOXG5_zDnI/AAAAAAAAAGo/lYG6k73YD9U/s400/Diagram2.jpg" /></a><br /><div><div></div><div>After talking to the surgeon we waited for the nurses to call us back to recovery. Around 9am they let me (only one parent) into recovery. The nurse was holding a <span id="SPELLING_ERROR_4" class="blsp-spelling-error">sippy</span> of apple juice for Danny to drink out of. I don't think he actually drank any, though. The nurse said he had been calling for me. He was mad about the IV in his ankle and the oxygen monitor taped to his toe. The first thing he said to me was "Foot," holding it up, "Off." The nurse had wrapped stuff around it but I think that made it bug him more. The nurse told me she had put arm restraints on him because he kept rubbing his eyes. I didn't bother to tell her the doctor said it was probably fine. I held Danny and took off his arm restraints (with the nurses permission). He was very tired and grumpy. He REALLY wanted to rub his eye. I didn't let him very much though because I didn't want it to get infected or anything. His eyelid looked a little bloody and swollen. His tears were a little bloody, too. It was pretty sad. We waited until the nurse got a call from "Post-Op" that they were ready for us, then took us over to a different bed where my husband met us. (I have no pictures from recovery since I was trying to soothe Danny. Sorry!)</div><br /><div>In Post-Op the nurse decided to take out the IV so Danny would relax. He kept throwing a fit and his oxygen levels would go down. She did warn us, though, that if Danny did not drink some clear liquids they may have to put it back in. In Post-Op they just want to make sure he is stable, that his oxygen levels stay above 90 for 20 <span id="SPELLING_ERROR_5" class="blsp-spelling-corrected">minutes</span>, and he keeps some liquid down. Danny was very grumpy and defiant. He did NOT want to drink his apple juice. And he really still wanted the oxygen monitor off his toe. He was snuggled against me and drifting in and out of sleep while we were in post-op. Every couple minutes he would cry again or rub his eye. I told him not to rub very much so he would kind of just touch it then put his hand back down. Anytime I asked him to drink his juice he would get upset. The nurse brought him a <span id="SPELLING_ERROR_6" class="blsp-spelling-error">popsicle</span> and a slushy but he wouldn't drink those either. The nurse gave us discharge instructions. The main thing was to make sure he was breathing normally, including checking on him through the night. She also told us signs of infection which were pretty much just <span id="SPELLING_ERROR_7" class="blsp-spelling-error">goopy</span> discharge. A slight fever is normal after surgery so she said not to worry about that in the first 24 hours. We got a prescription for Tylenol with <span id="SPELLING_ERROR_8" class="blsp-spelling-corrected">Codeine</span>. The nurse told us the best pain management would be to alternate Tylenol and Motrin every 3 hours. Danny was also prescribed an antibiotic just to make sure that there was no infection from the surgery. Around 10am the nurse called the anesthesiologist and told him that Danny's IV was out, he would not take liquid, but that she thought he would be fine as soon as he left. Luckily the anesthesiologist thought Danny would be fine too and didn't make us put in another IV. Actually, as soon as the nurse was off the phone Danny decided to drink his whole <span id="SPELLING_ERROR_9" class="blsp-spelling-error">sippy</span> of apple juice. The nurse came in and told us we could get him dressed and go. After drinking his apple juice he was a lot happier. He even asked for more! He was alert and happy as we walked through the hospital and to the car.</div><br /><br /><br /><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5522415001797630466" border="0" alt="" src="http://4.bp.blogspot.com/_Insyby0c8Lw/TKOPL2RvmgI/AAAAAAAAAFY/VDVFlagcPk0/s320/Danny%27s+Surgery+031.JPG" /><br /><br /><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 240px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5522415005717398082" border="0" alt="" src="http://4.bp.blogspot.com/_Insyby0c8Lw/TKOPME4SgkI/AAAAAAAAAFg/noY_ImmhHPM/s320/Danny%27s+Surgery+033.JPG" /><a href="http://2.bp.blogspot.com/_Insyby0c8Lw/TKOPMuz6BDI/AAAAAAAAAFo/BkSA-MZFzh0/s1600/Danny%27s+Surgery+035.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5522415016973304882" border="0" alt="" src="http://2.bp.blogspot.com/_Insyby0c8Lw/TKOPMuz6BDI/AAAAAAAAAFo/BkSA-MZFzh0/s320/Danny%27s+Surgery+035.JPG" /></a><br /><div><div>In the car the sun was a little bright. Danny tried closing his eyes and could do it fairly well, but he said, "Bright," to me so I put a blanket in front of the window. He fell asleep about half an hour into the drive. His eye was closed pretty well, but it is still very swollen (see bottom picture). He is now asleep in his bed. I'll try to take a lot of pictures of his recovery and post on that tomorrow.</div><br /><a href="http://3.bp.blogspot.com/_Insyby0c8Lw/TKORGdsUs9I/AAAAAAAAAGA/LNDg4li-aT0/s1600/Danny%27s+Surgery+037.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 240px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5522417108322137042" border="0" alt="" src="http://3.bp.blogspot.com/_Insyby0c8Lw/TKORGdsUs9I/AAAAAAAAAGA/LNDg4li-aT0/s320/Danny%27s+Surgery+037.JPG" /></a><br /><br /><div><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5522417093906736370" border="0" alt="" src="http://3.bp.blogspot.com/_Insyby0c8Lw/TKORFn_bJPI/AAAAAAAAAFw/IyIFD0B0v_c/s320/Danny%27s+Surgery+040.JPG" /><a href="http://3.bp.blogspot.com/_Insyby0c8Lw/TKORGCGlUxI/AAAAAAAAAF4/jPmNIbShQys/s1600/Danny%27s+Surgery+042.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5522417100916085522" border="0" alt="" src="http://3.bp.blogspot.com/_Insyby0c8Lw/TKORGCGlUxI/AAAAAAAAAF4/jPmNIbShQys/s320/Danny%27s+Surgery+042.JPG" /></a> </div></div></div></div></div></div></div></div></div></div></div></div></div></div>Tiffanyhttp://www.blogger.com/profile/16824547978990917292noreply@blogger.com3tag:blogger.com,1999:blog-1957814114635512517.post-73271525977144360172010-07-02T20:12:00.000-07:002010-07-31T07:15:25.080-07:00Round Two<a href="http://3.bp.blogspot.com/_Insyby0c8Lw/TC8sg4ve6rI/AAAAAAAAAEA/pqeEilav_R0/s1600/pics+002.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5489655414286903986" border="0" alt="" src="http://3.bp.blogspot.com/_Insyby0c8Lw/TC8sg4ve6rI/AAAAAAAAAEA/pqeEilav_R0/s320/pics+002.JPG" /></a><br /><div>Danny turns two this month. His eyelid has been getting progressively droopier. Today we went to the <span id="SPELLING_ERROR_0" class="blsp-spelling-error">opthamologist</span> for the first time in a year. As expected, Dr. Hoffman suggested he undergo surgery again soon. He said Danny's eyelid is almost to the point where it will be affecting his vision. So far, though, it has not. They dilated his eyes and the doctor said his vision looks symmetrical, so that's great. It means he sees just as well out of both eyes.</div><br /><div>Here are some pictures from the appointment:</div><br /><a href="http://2.bp.blogspot.com/_Insyby0c8Lw/TC8s3-g5V8I/AAAAAAAAAEQ/U_p8Iz-XGG0/s1600/pics+177.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 240px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5489655810973325250" border="0" alt="" src="http://2.bp.blogspot.com/_Insyby0c8Lw/TC8s3-g5V8I/AAAAAAAAAEQ/U_p8Iz-XGG0/s320/pics+177.JPG" /></a><br /><div><a href="http://1.bp.blogspot.com/_Insyby0c8Lw/TC8s3UxWiLI/AAAAAAAAAEI/UFSicjzryz4/s1600/pics+180.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 240px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5489655799768058034" border="0" alt="" src="http://1.bp.blogspot.com/_Insyby0c8Lw/TC8s3UxWiLI/AAAAAAAAAEI/UFSicjzryz4/s320/pics+180.JPG" /></a><br /><div></div>We see the surgeon on July 21st so I'll update then. </div><div></div><div></div><div><strong>UPDATE:</strong></div><div></div><div></div><div>We are scheduled for surgery on September 29th.<br /></div><br /><div>The surgeon said it will be very similar to the original surgery. If they can just shorten the sling, which it sounded like was his plan, they will only raise it a millimeter. He did say that sometimes they need to replace the whole sling but he didn't sound like he thought he had to do that with Danny. He told us that when they put in the muscle (fascia <span id="SPELLING_ERROR_2" class="blsp-spelling-error">lata</span>) from the leg around 4-yrs-old (yes, he did change the age), they take some of the puffiness out of the eyelid which allows the eye to open more.</div><br /><div>The surgeon did give us some insight about getting the eyes to be symmetrical. He said that raising one eyebrow is not a natural thing to do, so unless Danny really wants to see something he is not going to make the effort. Some parents really want the eyes symmetrical and the only was to do that is to kill the good muscle in the other eye and put slings on both sides. He said he doesn't recommended it and it goes against his medical ethics to destroy good tissue, but about 10 percent of parents choose to do it. He suggests leaving your child the choice when they are old enough to make it.<br /></div><div></div>Tiffanyhttp://www.blogger.com/profile/16824547978990917292noreply@blogger.com3tag:blogger.com,1999:blog-1957814114635512517.post-903792356491870902009-07-27T18:42:00.000-07:002009-07-27T19:30:05.719-07:00One-Year-Old Update<div align="center">Well, Danny is now a year old and doing great. We went to opthamologist last week and his vision is great, still no need for glasses.<br /><br /></div><div align="center">Cosmetically, there are days when his eyelid looks noticeably droopy and I get people asking me what is wrong with his eye (everyone asks if he has a lazy eye for some reason. Nope, just a lazy eyelid). But some days they look exactly the same. I think if he is tired it is more noticeable. Also, when he is looking up at me from my lap, sometimes he looks creepy. His right eye disappears behind the eyelid so just the white is showing. BUT normally he looks fine.<br /></div><div align="center"><br /></div><div align="center">I don't check this very often so if you would like to ask me a question please feel free to email me at <a href="mailto:tiffanynvaughn@gmail.com">tiffanynvaughn@gmail.com</a>. </div><div align="center"><br /></div><div align="center">Here are some pictures. The flash makes it worse because he kind of squints, but I tried to get some good day eye pics and some bad day ones. This first one was taken in July 2009 in a dark movie theater: </div><div align="center"><br /></div><a href="http://4.bp.blogspot.com/_Insyby0c8Lw/Sm5fzJF7ssI/AAAAAAAAABM/Wv2mTu3i2HU/s1600-h/IMG_7029.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5363329538463609538" border="0" alt="" src="http://4.bp.blogspot.com/_Insyby0c8Lw/Sm5fzJF7ssI/AAAAAAAAABM/Wv2mTu3i2HU/s320/IMG_7029.JPG" /></a> <div align="center">Below: This is also July 2009 but his eye looks normal</div><br /><a href="http://2.bp.blogspot.com/_Insyby0c8Lw/Sm5gTo_HeTI/AAAAAAAAABU/jp6KYKCaG2w/s1600-h/IMG_7042.JPG"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 240px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5363330096780769586" border="0" alt="" src="http://2.bp.blogspot.com/_Insyby0c8Lw/Sm5gTo_HeTI/AAAAAAAAABU/jp6KYKCaG2w/s320/IMG_7042.JPG" /></a><br /><br /><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5363330894883553858" border="0" alt="" src="http://2.bp.blogspot.com/_Insyby0c8Lw/Sm5hCGJpgkI/AAAAAAAAABs/ibpN0loqrj8/s320/11+months.jpg" /> <p align="center"> Above and Below are from June 2009.<br /></p><a href="http://1.bp.blogspot.com/_Insyby0c8Lw/Sm5gtg8e2xI/AAAAAAAAABc/8ZRX4XBCcBE/s1600-h/11+months+good.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 240px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5363330541298834194" border="0" alt="" src="http://1.bp.blogspot.com/_Insyby0c8Lw/Sm5gtg8e2xI/AAAAAAAAABc/8ZRX4XBCcBE/s320/11+months+good.jpg" /></a> These aren't the cutest pictures but I just wanted to show you what his eye looked like, so hopefully you can tell.Tiffanyhttp://www.blogger.com/profile/16824547978990917292noreply@blogger.com0tag:blogger.com,1999:blog-1957814114635512517.post-71901127855335925152008-11-19T19:08:00.000-08:002011-10-13T21:42:26.403-07:00Post-Op Appointments<a href="http://2.bp.blogspot.com/-t5kgeqYET9Q/Tpe9mdnb5PI/AAAAAAAAANI/KzLLTp6AZTY/s1600/Nov%2B28.JPG"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 200px; FLOAT: left; HEIGHT: 198px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5663203524924400882" border="0" alt="" src="http://2.bp.blogspot.com/-t5kgeqYET9Q/Tpe9mdnb5PI/AAAAAAAAANI/KzLLTp6AZTY/s200/Nov%2B28.JPG" /></a> Today we had our post-op appointments.<br /><br />First we saw Dr. Patel, the surgeon. He said everything looks good. He also said that Danny's eyelid was opening more when he lifted his eyebrow, which when he said that it was, but I hadn't noticed before. I asked about the swelling and he said that would decrease over time. Since those are muscles he isn't used to he strains them more, thus swelling occurs. I'm not convinced, though, since he had the swelling before the surgery. Dr. Patel again told me that this was a temporary procedure to get the eye open so the vision could develop. The silicone sling will lose its elasticity over time and Danny's eyelid will start to drop more. When Danny is 3 or 4 they will do another permanent surgery. We will have to see Dr. Patel again in 4-6 months.<br /><br />Next we went over the Dr. Hoffman, the <span id="SPELLING_ERROR_0" class="blsp-spelling-error">opthamologist</span>. The nurse tested Danny's eyes using a Teller Acuity Test (<a href="http://www.stereooptical.com/html/teller-acuity-cards.html">http://www.stereooptical.com/html/teller-acuity-cards.html</a>). She said his vision was good. The doctor looked at his eyes and said everything looks good. He doesn't need any patching or glasses. His eye is staying moist and I just have to make sure it stays that way. We have to see Dr. Hoffman again in 2-3 months.Tiffanyhttp://www.blogger.com/profile/16824547978990917292noreply@blogger.com2tag:blogger.com,1999:blog-1957814114635512517.post-6409980086115960272008-11-15T19:27:00.000-08:002011-10-13T21:37:20.272-07:00Two Week Update<a href="http://2.bp.blogspot.com/-Rqgz91RVTK8/Tpe75_Jx3CI/AAAAAAAAAMY/7stlWYus30Q/s1600/Nov%2B12.jpg"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 164px; FLOAT: left; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5663201661321075746" border="0" alt="" src="http://2.bp.blogspot.com/-Rqgz91RVTK8/Tpe75_Jx3CI/AAAAAAAAAMY/7stlWYus30Q/s200/Nov%2B12.jpg" /></a>It's been two weeks now and the "drops" I have to put in his eyes is really an ointment. It's called "Refresh PM." It's a pain because whenever he sees the stuff coming toward his eyes, he squints them shut, and I end up getting the ointment on his eyelashes instead of his eye. But after a little stuggle I usually get it in. And it's not that much of a pain because I only have to do it a few times a day.<br /><br /><div><br /><div><br /><br /><p>Did you notice I said he squints his eye shut? It closes a lot more than I thought it would. He can<a href="http://2.bp.blogspot.com/-eGvfOM9w3ac/Tpe8BLH4wiI/AAAAAAAAAMw/EqSILGPUpp8/s1600/Nov%2B13.jpg"><img style="MARGIN: 0px 0px 10px 10px; WIDTH: 144px; FLOAT: right; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5663201784793448994" border="0" alt="" src="http://2.bp.blogspot.com/-eGvfOM9w3ac/Tpe8BLH4wiI/AAAAAAAAAMw/EqSILGPUpp8/s200/Nov%2B13.jpg" /></a> squint it completely shut. When he sleeps it still is slightly open, but not too much. A lot less then right after his surgery. And when he is tired it looks like his left eye is the one that has a problem because it is closed and the right eye stays open. Overall, though, he looks a lot cuter. If he is awake and looking up or forward, you can't even tell he ever had a problem. I do try to keep his face out of the wind more and ease him into brighter light so his eye can adjust, but it seem to bother me more than him.</p><br /><p><a href="http://1.bp.blogspot.com/-OwlMngy0zlA/Tpe76aZG20I/AAAAAAAAAMk/Vpj74RD6JnM/s1600/Nov%2B14.jpg"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 200px; FLOAT: left; HEIGHT: 196px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5663201668633123650" border="0" alt="" src="http://1.bp.blogspot.com/-OwlMngy0zlA/Tpe76aZG20I/AAAAAAAAAMk/Vpj74RD6JnM/s200/Nov%2B14.jpg" /></a>His right eye is still swollen but it is not surgery related. Who knows if they will ever figure out what is causing that.</p><br /><p>I keep reminding myself is that this surgery was just to get his eye open so his vision could develop. I am going to go over all the surgery options with the surgeon before doing the permenant proceduce to see if there is one that will let his eye open and close more naturally.</p><br /><p>We are having our post-op follow-up appointment November 19th so I will post more then. </p></div></div>Tiffanyhttp://www.blogger.com/profile/16824547978990917292noreply@blogger.com0tag:blogger.com,1999:blog-1957814114635512517.post-4411153069828657792008-11-15T19:18:00.000-08:002008-11-15T19:26:07.015-08:00Post-Op Day 2<a href="http://1.bp.blogspot.com/_Insyby0c8Lw/SR-RMMCXT4I/AAAAAAAAAAM/U4zRo572qWQ/s1600-h/post-op+day+2.jpg"><img id="BLOGGER_PHOTO_ID_5269089727622369154" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 300px; CURSOR: hand; HEIGHT: 400px; TEXT-ALIGN: center" alt="" src="http://1.bp.blogspot.com/_Insyby0c8Lw/SR-RMMCXT4I/AAAAAAAAAAM/U4zRo572qWQ/s400/post-op+day+2.jpg" border="0" /></a><br /><div>By day two, Danny was back to himself, only he seemed slightly happier. Although his stitches concerned me , he seemed to have no problem with them. I think I gave him regular <span class="blsp-spelling-corrected" id="SPELLING_ERROR_0">Tylenol</span> but just as a precaution; he wasn't acting like he really need it. It was so nice to see him with two open eyes! </div>Tiffanyhttp://www.blogger.com/profile/16824547978990917292noreply@blogger.com0tag:blogger.com,1999:blog-1957814114635512517.post-28846502100635707022008-10-29T14:01:00.000-07:002009-09-26T21:16:49.748-07:00Frontalis Sling Surgery<div align="center">The before picture:<a href="http://2.bp.blogspot.com/_Insyby0c8Lw/Sr7l-y8K1kI/AAAAAAAAADE/ZOxl1P7fU2w/s1600-h/ptosis+surgery.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 240px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5385995071370483266" border="0" alt="" src="http://2.bp.blogspot.com/_Insyby0c8Lw/Sr7l-y8K1kI/AAAAAAAAADE/ZOxl1P7fU2w/s320/ptosis+surgery.jpg" /></a> Pre-Surgery:<br /><a href="http://1.bp.blogspot.com/_Insyby0c8Lw/Sr7l6gweKcI/AAAAAAAAAC8/FM8TwyWJbeY/s1600-h/DannysEyeSurgery021.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5385994997770103234" border="0" alt="" src="http://1.bp.blogspot.com/_Insyby0c8Lw/Sr7l6gweKcI/AAAAAAAAAC8/FM8TwyWJbeY/s320/DannysEyeSurgery021.jpg" /></a><br />about 20 min post surgery:<br /><div><a href="http://1.bp.blogspot.com/_Insyby0c8Lw/Sr7l0_eRGKI/AAAAAAAAAC0/EkwOToXh6zg/s1600-h/DannysEyeSurgery026.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5385994902936033442" border="0" alt="" src="http://1.bp.blogspot.com/_Insyby0c8Lw/Sr7l0_eRGKI/AAAAAAAAAC0/EkwOToXh6zg/s320/DannysEyeSurgery026.jpg" /></a><br /><br />In the car on the ride home, about 45 min post surgery:<br /><div><a href="http://2.bp.blogspot.com/_Insyby0c8Lw/Sr7lxvXXm5I/AAAAAAAAACs/0tI3W4ppMgU/s1600-h/DannysEyeSurgery030.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 240px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5385994847072525202" border="0" alt="" src="http://2.bp.blogspot.com/_Insyby0c8Lw/Sr7lxvXXm5I/AAAAAAAAACs/0tI3W4ppMgU/s320/DannysEyeSurgery030.jpg" /></a><br />Sleeping in the car on the ride home:<br /><div><a href="http://4.bp.blogspot.com/_Insyby0c8Lw/Sr7lb5ps19I/AAAAAAAAACk/r9M9jHzEuAI/s1600-h/DannysEyeSurgery031.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5385994471876646866" border="0" alt="" src="http://4.bp.blogspot.com/_Insyby0c8Lw/Sr7lb5ps19I/AAAAAAAAACk/r9M9jHzEuAI/s320/DannysEyeSurgery031.jpg" /></a><br />Home about 2-3 hours post surgery:<br /><div><a href="http://1.bp.blogspot.com/_Insyby0c8Lw/Sr7lYY1TdvI/AAAAAAAAACc/yhweXBLIdHc/s1600-h/DannysEyeSurgery033.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5385994411527337714" border="0" alt="" src="http://1.bp.blogspot.com/_Insyby0c8Lw/Sr7lYY1TdvI/AAAAAAAAACc/yhweXBLIdHc/s320/DannysEyeSurgery033.jpg" /></a><br />Sleeping about 3.5 hours post-surgery:<br /><div><a href="http://3.bp.blogspot.com/_Insyby0c8Lw/Sr7lU49_pOI/AAAAAAAAACU/WwgC9h4UBFU/s1600-h/DannysEyeSurgery038.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5385994351434245346" border="0" alt="" src="http://3.bp.blogspot.com/_Insyby0c8Lw/Sr7lU49_pOI/AAAAAAAAACU/WwgC9h4UBFU/s320/DannysEyeSurgery038.jpg" /></a><br />These are pictures from Danny's <span id="SPELLING_ERROR_0" class="blsp-spelling-error">Frontalis</span> Sling Surgery on Wed., October 29<span id="SPELLING_ERROR_1" class="blsp-spelling-error">th</span>. My mother-in-law, Elaine, drove us down and stayed with us. She also took most of the pictures for me. We checked into Primary Children's Hospital in Salt Lake City at 6:30 AM. They took him back for his surgery about an hour later around 7:30 AM. <div><div><div align="center"><div><br /><p>For the surgery they did 2 pin prick incisions on his eyelid and three little ones above his eye. The ones above have 2 stitches. They inserted a silicone sling that will help him open his eye. Dr. Patel, his surgeon, said everything went well. He said that his eye will be open when he is sleeping because of the sling but eventually it will not be open as wide. I will have to give him eye drops before naps and sleep time. For three days I will have to put an ointment on his incisions and on his eye. And he will take <span id="SPELLING_ERROR_2" class="blsp-spelling-error">amoxicillian</span> for a week to prevent infection (if it gets infected they have to take it out and put it back later). Since the sling is artificial (silicone) it will have to be replaced with living tissue. When he gets "bigger" they will take a tendon, I think, from his thigh and put it in his eyelid. If the silicone one becomes too flexible before they can do the <span id="SPELLING_ERROR_3" class="blsp-spelling-corrected">permanent</span> surgery, they will have to replace the sling with another temporary one.</p><p>About an hour later they called me into recovery. Only one person is allowed in there so I don't have any pictures since I was holding him the whole time. He was pretty cranky in there. I was only in there for about 15-20 min before they wheeled us into post-op, which is just another recovery room. I nursed him in there and he ate well. He was still cranky though because they kept messing with him and checking him out. But after they got the IV out and we were changing into his <span id="SPELLING_ERROR_4" class="blsp-spelling-error">pjs</span> he became more awake and alert, although you could tell he was drugged. We were on our way home by 10:00 AM. When we got home an hour later he was awake and happy. He stayed awake until he had <span id="SPELLING_ERROR_5" class="blsp-spelling-error">tylenol</span> with <span id="SPELLING_ERROR_6" class="blsp-spelling-error">codene</span> at noon. </p><p>So...what's next? We will see Dr. Patel again in about a month to make sure everything is going well, and also Dr. Hoffman to make sure he can see out of the newly opened eye. I'll try to keep an update on his recovery.</p></div></div></div></div></div></div></div></div></div><br /></div>Tiffanyhttp://www.blogger.com/profile/16824547978990917292noreply@blogger.com9tag:blogger.com,1999:blog-1957814114635512517.post-26413241163981654692008-10-29T13:20:00.000-07:002011-10-13T21:25:42.835-07:00DiagnosisMy son, Daniel, was born on July 19th, 2oo8 with <span id="SPELLING_ERROR_0" class="blsp-spelling-error">Congential</span> <span id="SPELLING_ERROR_1" class="blsp-spelling-error">Ptosis</span> or a droopy eyelid. All I found was one blog with another mother's experience and it was much different than mine, so I thought I'd share here.<br /><br /><span style="color:#ff0000;"><a href="http://2.bp.blogspot.com/-EHk253Zr6zo/Tpe3NCCQsyI/AAAAAAAAALE/Hek2kXCGiv8/s1600/july%2B26.jpg"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 199px; FLOAT: left; HEIGHT: 159px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5663196490954224418" border="0" alt="" src="http://2.bp.blogspot.com/-EHk253Zr6zo/Tpe3NCCQsyI/AAAAAAAAALE/Hek2kXCGiv8/s320/july%2B26.jpg" /></a>Week of July 23rd</span>: A week after Danny was born he still had only peeked out of his right eye a couple times. The eyelid always looked totally relaxed even when the other one was open. After looking online we thought it was probably <span id="SPELLING_ERROR_2" class="blsp-spelling-error">ptosis</span>, but since you can't really find anything, we weren't sure. We went to his pediatrician who didn't know what it was and sent us to an <span id="SPELLING_ERROR_3" class="blsp-spelling-error">opthamologist</span>. They "couldn't" get us in for 3 weeks.<br /><a href="http://4.bp.blogspot.com/-JbvqxUbge_c/Tpe44tHQx8I/AAAAAAAAAMA/ayjeAS6hRhI/s1600/aug%2B12.jpg"><img style="MARGIN: 0px 0px 10px 10px; WIDTH: 194px; FLOAT: right; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5663198340763928514" border="0" alt="" src="http://4.bp.blogspot.com/-JbvqxUbge_c/Tpe44tHQx8I/AAAAAAAAAMA/ayjeAS6hRhI/s200/aug%2B12.jpg" /></a><br /><span style="color:#ff0000;">August 14th</span>: Dr. Felt, the opthamologist, thought that his eyelid looked swollen. He said that is not <a href="http://2.bp.blogspot.com/-BvS4OxmKrQI/Tpe3c1bVd4I/AAAAAAAAALQ/8KfsqhMW__k/s1600/aug%2B12.jpg"></a>how <span id="SPELLING_ERROR_4" class="blsp-spelling-error">ptosis</span> usually presents so he wanted us to go to a pediatric specialist to see if there was a mass in his eyelid keeping it from opening. Dr. Felt said he wanted to get it checked soon so they were able to set us up for the next week.<br /><br /><span style="color:#ff0000;">August 22nd</span>: We went to Primary Children's Hospital and saw <a href="http://3.bp.blogspot.com/-UauxGCsAQEM/Tpe3s2V2LxI/AAAAAAAAALc/ddn3UmFiApk/s1600/aug%2B19.jpg"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 131px; FLOAT: left; HEIGHT: 140px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5663197037570961170" border="0" alt="" src="http://3.bp.blogspot.com/-UauxGCsAQEM/Tpe3s2V2LxI/AAAAAAAAALc/ddn3UmFiApk/s320/aug%2B19.jpg" /></a>Dr. Hoffman who thought there might be a mass, but since the treatment was steriods, wanted to be 100% sure. He said we needed to get his eye open soon, though, so that he could develop vision there. He had us schedule an MRI. Up to this point, we didn't have insurance and were paying cash but my husband, Travis, had gotten a new job with great benefits and those started Sept. 2nd so we asked if it was fine to wait a couple weeks (like they would have got us in sooner anyway...)<a href="http://1.bp.blogspot.com/-3wl_nif9D9I/Tpe3-XRWasI/AAAAAAAAALo/kFGdujMvXjA/s1600/aug%2B25.jpg"><img style="MARGIN: 0px 0px 10px 10px; WIDTH: 121px; FLOAT: right; HEIGHT: 115px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5663197338468248258" border="0" alt="" src="http://1.bp.blogspot.com/-3wl_nif9D9I/Tpe3-XRWasI/AAAAAAAAALo/kFGdujMvXjA/s320/aug%2B25.jpg" /></a> and it was. He said he would call us after the MRI to see what the next step would be. We also were told to patch his good eye a couple hours everyday so he could develop vision in is right eye. (We tried this a couple times, but newborns don't stay away a couple hours at a time. If fact, Danny, at this point, barely stayed away for an hour. The couple times we did try to patch seemed pointless. The patch didn't stick good and he would just close the droopy eye and fall asleep.)<br /><br /><span style="color:#ff0000;">Sept. 4th</span>: Danny had an MRI of his right orbit to check for a mass or nerve damage, like signs of a seizure. They had to put him out and everything, and even after insurance it still cost almost $600. While in the recovery room the doctor who performed the MRI came and told me everything looked great and there was no mass or nerve damage that they could see, only superficial swelling. Great news except we didn't know where that left us on getting his eye fixed.<br /><br /><span style="color:#ff0000;">Week of Sept 11th:</span>We waited a week before calling Dr. Hoffman to see what was going on. We left a message and they next evening had a message on our phone from him that said he would try calling again later...<br /><br /><span style="color:#ff0000;">Week of Sept. 15th:</span>We still hadn't heard from him so I called again and he was on vacation for a week so I left a message and they said he would call me when he got back.<br /><br /><span style="color:#ff0000;"><a href="http://1.bp.blogspot.com/-U1cHc_weqAA/Tpe4ZqhVRLI/AAAAAAAAAL0/n-UAf0OT_H0/s1600/Sept%2B22.jpg"></a>Week of Sept. 22nd:</span>After STILL not hearing from the doctor I called again and said it has been three weeks and I still didn't know what was going on with my sons eye after his MRI. I sort of pushed them this time and the nurse became an advocate for me but said they would have to find his chart and then call me back. Half an hour later the docto<a href="http://3.bp.blogspot.com/-czVMphNM_zE/Tpe5geugkRI/AAAAAAAAAMM/BX9VWdXykVA/s1600/sept%2B25.jpg"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 154px; FLOAT: left; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5663199024096776466" border="0" alt="" src="http://3.bp.blogspot.com/-czVMphNM_zE/Tpe5geugkRI/AAAAAAAAAMM/BX9VWdXykVA/s200/sept%2B25.jpg" /></a>r called. "We really need to get that eye open," he says. Yeah, thanks for calling me back so soon so we could do that, idiot. Anyway, he said that just because the MRI didn't show a mass doesn't mean there isn't one so he said scheduling would call me in just a minute set up an appointment with someone for an ultrasound on his eye, to be followed immediatly by an appointment with him. They did call right away this time and told me to go to Dr. Harry, then Dr Hoffman on October 1st.<br /><br /><span style="color:#ff0000;">October 1st:</span>I showed up at Dr. Harry's office and they told me I was scheduled for the day BEFORE! I said, I know they told me today. She checked her schedule and said they could fit us in at the same time. I asked if she could call dr. Hoffman's office to see if they also had me for yesterday. She was really sweet and called for me. They did have me for the day before but said they could fit me in at the same time my appt was. Funny how if you schedule before it take weeks to get you in but if you just show up they can just get you in right away... Dr. Harry did the ultrasound. He just rubbed the tool on his eyelid like they do to your belly when your pregnant. He said it looked normal and sent me to the next doctor. Doctor Hoffman decided if there was no mass, the swelling was irrelevant and it was ptosis. He wanted to get us scheduled for surgery right away and sent us to his colleauge who specializies in children's opthomology and plastics to have him look at it and get us scheduled. This doctor was at Moran Eye Center which is connected to Primary Children's Hospital where I was. They were also able to get me in right away without an appointment. He looked at his eye, took pictures, and told me about the procedure. Then we scheduled Danny's Frontalis Sling surgery for October 29th (which I made sure was the earliest they could get me in)Tiffanyhttp://www.blogger.com/profile/16824547978990917292noreply@blogger.com7